Skip to main content

Posts

Senior Year

Hello and welcome back, or if you are here for the first time, welcome! As my oldest son approaches the end of his senior year, I find myself feeling a wide range of emotions from, oh my gosh I’m so proud of him, to oh my gosh he’s leaving home soon, and then the tears start falling. I’m not really surprised by these emotions because I’ve witnessed many moms I’m close to go through this already. Hearing about it and feeling it are two very different things! My mom was telling me she was sad too, but then she said, while it is sad, this is what you’ve been doing all this time as his mom. Preparing him and equipping him to leave and be a successful individual of society. She, as she usually is, was exactly right.  After that conversation, I had a lot of memories of my senior year surface. The second half of my senior year was actually a really difficult time for me. I doubt I was shedding much light on how difficult it really was for me to my friends, and probably not even my family. I l
Recent posts

Community Chat #1 Rhi

Hello and welcome back, or if you are new here, thanks for stopping by! Part of what has been life changing for me, since finally being diagnosed about 3 1/2 years ago, after 44 years of searching, is by far, connecting with others who share my same struggles. Finding others who truly understand what life is like with a disability, really can make all the difference in the world! Especially when it’s the same diagnosis. It fills a void that so desperately needs to be filled, in my opinion. So, what do a 22 year old Australian woman and 47 year old American woman have in common? Turns out a lot actually. I met Rhi online (the memory of exactly how is a bit fuzzy for both of us šŸ˜Š), and ever since we have had a great connection. We try to video chat regularly, and will usually talk for about 2 hours. We’ve also done an Instagram Live together, which was a lot of fun!  It’s fantastic. We not only talk about life with a disability, but loads of other things, as any friends would. We have a

The Gift

Hello and welcome back, or if you are new here, welcome to Humbly Courageous! The gift of movement. How often do you think about and appreciate all your body can do? All the little movements our bodies do that we may take for granted. Lifting your hand to your mouth to brush your teeth, eat, brush your hair, bend over to tie your shoes, sit up in bed, just to name a few. I haven’t always been so acutely aware and as grateful as I should be for the gift of movement that I have. Like most of us do, I took it for granted far too often.  You know the saying, someone always has it worse than you, be grateful! While this is certainly true, it’s not always helpful to say that to someone. But also, when soaking in the truth of that statement, if you are able, it’s really eye opening. The truth is, we all struggle in some way. Some days, years, months we are better equipped to handle our struggles and sometimes they almost take us under and we feel like we are drowning. It’s easy to get bitter

I’m Fine!

Hello and welcome back, or if you are new here, welcome! I often feel like it’s hard to come up with the right words sometimes to talk about all the complexities of my thoughts I have surrounding my disability. That may surprise you coming from someone who has never known any different, but it’s true. Sometimes, I will hear someone say something and think, yeah that’s what I’ve been trying to say for years! It’s not that it’s some big huge earth shattering thing even, often just a simple phrase.  I was watching a show the other night, and one of the characters had a disability. She said something like, I’m always trying to prove to everyone around me that I’ve got this under control. I was like, yes!! I can totally relate. That’s what it feels like to me. I think we can all relate to that in some way. Often times, we go around and present our best selves, stuffing away all the ugly and hard right? We want those around us to feel like we’ve got this under control. Trouble is, we often d

Disabled Momma

Hello and welcome back, and if this is your first time here, welcome! As a parent, I know I’m not alone in thinking that I have made a lot of mistakes, and have regrets looking back on how I’ve handled certain situations with my kids. I have one in particular though that breaks my heart, and I knew when I was making the decision at the time that I would look back on it, and it would do just that. Break my heart. Still, I felt like it was the best decision at the time. I was fortunate to work part-time when my kids were in elementary school. I worked three days a week and the other two, I used to take care of things I needed to get done, medical appointments, physical therapy, or to just give my body the break it was demanding. I was physically about as maxed out as I could be, with Jamie carrying me to my bed many nights because I couldn’t take another step. Motherhood is hard, and requires a lot of physical activity just to keep up. At my house, I cook all of the dinners, clean, and d

Deep Breath

Hello and welcome back, or if you are new here welcome!…..Deep breath this week, as we are diving into the emotional trauma of 47 years disabled… here we go with just a few examples. Sharing these are really hard for me, but I think it’s important to share because these things are not uncommon for those who are disabled. Some I’ve shared before, some I haven’t.  “Yeah, from the look of your profile picture you really look disabled šŸ˜‚” There is SO much I could say to this. What does that mean? Am I supposed to look a certain way as a disabled woman? Please, enlighten me. I’m all ears.  Or how about the folks that left me on the floor of a bar/restaurant because they assumed I was drunk because I fell as I was exiting because the door swung the opposite of what I was expecting, so easily throwing me off balance. Had not had a drop to drink. Left me there, staring at me as if I was a zoo exhibit.  Even the manager came by and told me to move because I was letting all of the cold air escap

Professor Adversity

Hello, welcome back, or if this happens to be your first time to Humbly Courageous, welcome! Life lessons. We all have them. We all have things in our lives that have taught us hard learned lessons. Often times, those things are the things we thought were the worst things to ever happen to us. When we look back, sometimes we realize that maybe they were there to help us, to shape our lives in the direction meant for our path.  My biggest teacher in life has been lengthy adversity. I’m only recently able to look back on my life, and really see that my lifelong disability has been my greatest teacher in life. It’s taught me empathy, patience, perseverance, how to cope with pain, how to fall and get back up again and again, how to live in the quiet and be content when the world around me is moving at a fast pace, how to appreciate the unique view from the sidelines, and how our hardships in life can be used to help others. It’s taught me that no matter how hard I wish something to go away