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Showing posts from December, 2020

About Me

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Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

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An Unexpected Opportunity

Hello! Wanted to come on here and talk about my recent stromal vascular fraction (SVF) stem cell treatment that I unexpectedly stumbled upon at an appointment to get my earlobes repaired. Crazy story, and a total intervention by God if you ask me. Maybe I'll eventually share that whole crazy story. I will try to share updates as I can of any progress, or lack of progress that I notice. I will start by saying this treatment isn't for the faint of heart. The treatment consists of liposuction to remove a small amount of fat (50-60cc) and then it goes through a process where the fat is separated from the stem cells. I won't be getting into all of the medical terminology or going too into depth about the process. If you want further information I would suggest doing your own research as it's a fascinating process. Our bodies potentially have the ability to heal themselves. That honestly blows my mind, and is very exciting to think about. The treatment that I did is not curre

Walking with Humble Courage

Hello! Welcome back! Haven't been on in awhile so wanted to give a life update! Last time we left off I said I was giddy with all of the possibilities that my Muscular Dystrophy diagnosis brings. Well, since then I have been working hard to connect in as many ways as I can and to make a difference in this world. My theme in life seems to be living well on the path that I was given. The path designed just for me by God. It's only been through this diagnosis, and fully accepting that this is me, this is my unique journey just for me, that I have felt more myself than ever.  Even though physically things have gotten worse, the weakness has progressed, and I have obviously gotten older, I feel more joy than I ever have. I can only attribute this to prayerful pleading with God to LEAD ME to the path I need to be on. Not to keep pounding on doors never meant to open for me, but to the path that was waiting for me to hop on and take off running so to speak. Speaking of running, in Oc