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Showing posts from May, 2021

About Me

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Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a type of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

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Tenacity

Hello, welcome back. This blogging journey has been a fun one for me. When I wrote my first blog in January of 2019, I had been at church that morning. The sermon was about not putting things off that you desire to accomplish or do because you are afraid you won't succeed, or you are worried what others may think, or you just plain don't believe in yourself. So, on the way home I brought it up to Jamie that writing a blog was something I had been thinking about doing, and thought I might give it a try.  He encouraged me to do it, and so I just found this website and wrote my first blog that day. I wrote a couple after that, but then went about 9 months without writing another. Then, I came across someone who had started out as a blogger, and she mentioned that in the beginning when she first started her blog, she gave herself an imaginary deadline. She didn't really have one, but she created one for herself. That really resonated with me, so I did the same. I decided that e

I Used to Be a Waitress

I used to be a waitress....that's a phrase Jamie and I jokingly use when we are trying to carry a bunch of stuff in one trip. I think I once said that and then dropped and broke everything I was carrying, so now it's a running joke. However, I really did used to be a waitress. During my college days, there was a place called Finale Dessert Cafe in the Keystone area. They served all kinds of desserts and coffee drinks. It was a really neat little place.  Always making me laugh!  I was a customer there, and found out they were hiring. I ended up working there for several months during college. If you've ever waited tables you know that it is hard on many levels. This cafe had a capacity of about 80 I believe, so it was fairly small, but it was usually full. It was a popular place. One of the things I found difficult about waiting tables was the initial approach. You are walking up to a group of strangers who are unpredictable, and that's intimidating. Add a physical disab

Parenting with Muscular Dystrophy

Welcome back, after tackling the topic of mental health with Muscular Dystrophy last week, I thought I'd talk this week more about something that brings me a lot of joy, yet challenges me more than anything ever has in my life! Being a mom with a disability. I have written a couple of blogs about each time I was pregnant and what that was like as someone living with MD. I said I would touch more on what it was like raising kids while also juggling a physical daily challenge. So, here's my experience so far with that! I have two boys who are now 13 and 17 years old! Time certainly goes by too fast. Don't blink. The stages in my life, going from living at home, then to college, then to moving out on my own, adding a husband, and then two kids definitely has just kept increasing my responsibilities and things that I am in charge of handling. When it's just you and your husband, the laundry loads are smaller, the grocery shopping, meal planning, and cooking are simpler. I g

Mental Health and Muscular Dystrophy-It takes a toll

Hello, welcome back. This week I felt like I should talk about mental health and Muscular Dystrophy. I feel like our mental health is something we don't talk a lot about, so I wanted to share how Muscular Dystrophy has affected my mental health because honestly speaking there have been some very dark times. I talk a lot about how MD affects me physically, but haven't shared a whole lot on the toll it has taken on my mental health over my lifetime. I've talked here and there about how it's hard to live daily with a physical disability. Something that you know you can't take medicine for and make it better like you would a headache, or a body ache. It NEVER GOES AWAY. It's there from the time you open your eyes in the morning, to the time you close your eyes to to go sleep at night. Obviously, it's physically grueling, and just so daunting, but you may not realize how much a physical disability can affect your mental health.  My rock My readers who are runners