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Showing posts from December, 2021

About Me

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Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a type of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

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That’s a Wrap

Hello and welcome back to another blog! I have been doing these weekly blogs for a year now. When I first set this goal for myself, a few people said things like, wow a weekly blog, that’s going to be a lot to keep up with! I didn’t know what to expect when I set that goal. Would anyone even read it, or would it help anyone? I’m glad I didn’t listen to the doubting voices of others, or even my own. This blog has brought me so much happiness, and has connected me with people all over the world! That seriously blows my mind.  My goal when I started Humbly Courageous, was to share my experiences as a lifelong disabled person. I have shared the good and the bad. The ups and downs of what it’s like to live with Muscular Dystrophy, as someone who is mostly still ambulatory, with the use of some assistive devices.  I am not naturally a bubbly positive person. I’ve always admired those who are. However, I think this blog journey has helped me to be a more positive person. I am definitely not p

Lightbulb Moment

Hello and welcome back to another blog! I often hear people say, forget about the past. You can’t change it. Look forward to the future! While I agree somewhat with that line of thinking (yikes, some of my past I am happy to forget!) I also think it’s important to sometimes look back to see how far we’ve come. What we have learned, what we’ve held onto that’s worth holding onto, and what we have overcome to get where we are today. I think our roadmaps would show that sometimes we stalled, many times we veered off the road, and a few times we stayed on course.  When I think back in regards to my disability it is astonishing how different my view of it is now verses then, and seeing how it all played out. My elementary years I was just starting to learn how different I walked  from my peers. I remember a lot of surgeries, some bullying and mocking, and also some really great friendships that were formed that have stood the test of time! I was blessed to have such a wonderful group of fri

On My Mind

Hello and welcome back to another blog! Today is International Day of Persons With Disabilities. Something that’s been on my mind lately, is that I’ve noticed when talking about my disability to others, I tend to downplay it, or try to get into the same sentence something like…I know it could be worse. I have a hard time just saying, this is how it is, how it’s always been and likely will continue to be, and the truth is it never gets easier. Period. It’s hard to explain my reality in a few words to others who aren’t familiar with disabilities. It’s frustrating to even think about trying to explain it all.  The reality is a lot of people just really don’t want to hear it. You start to get in return, this blank stare and things get awkward.  Clearly, I know things could be worse. I often talk about focusing on gratitude because it really does make a difference in life, and I do have so much to be grateful for. However, I find  that when I’m always saying “it could be worse” that it bloc