Humbly Courageous

Hello and welcome back, or if you are new here, welcome to Humbly Courageous! My hope is that when you are in the space of this blog you learn something new about what life is like as someone with a lifelong disability. That maybe it opens your eyes to things you never thought of. Did you know you are capable of kicking your own butt, actually knocking yourself out? Turns out you definitely can. I did just that recently.   It’s not that I didn’t see it coming, I did. I saw it coming for months really. I felt it building. I, of course, knew my son was graduating high school and in the weeks leading up to the final peak, which was the graduation party, there would be many events celebrating his accomplishments. I wasn’t about to miss one single second of seeing all of his hard work come to fruition. In my mind, I could do it all, I could be super mom! I would make everything so special. It’s what I wanted to do.  A normal day, not sprinkled with extra events, typically pushes me to my ph

Hello, and welcome back, if you are a new reader I’m glad you are here. My hope is that in reading this you feel seen or heard if you are living with a disability, or if you aren’t, maybe you will learn something about disabilities that you didn’t know. I’ve lived 48 years with Muscular Dystrophy, and I like to think I’m an expert in the sense that I am a seasoned veteran and have a lot of experiences to share.  Gracious as defined by Miriam Webster is marked by kindness and courtesy. Always something to strive to be, gracious. As someone who gets a lot of comments when I go out in public, I’m not always in the mood to be  gracious. I want to represent people living with disabilities in a positive light. I really do. I want to educate when the opportunity presents itself, but I’m just not always in a mind space to do so.  Whenever I go out in public in my scooter I get a lot of unsolicited comments. The other night at my son’s graduation here are some things I heard. “Wow, wish I had o

Hello and welcome back, or if you are new here welcome! Glad you stopped by! Around here at Humbly Courageous, my hope, as the author of this blog, is that you will get a glimpse into the life of a middle aged woman, a wife and a mother of two, who has lived a lifetime with Muscular Dystrophy. My life experiences from my perspective, and hopefully learn something you didn’t know about disabilities.  One question that I rarely get asked is, what does Muscular Dystrophy feel like to you. I am often asked what’s wrong with your leg, or why do you walk funny, or comments like yeah I broke my leg once, I know how you feel! However, no one really ever asks me what does it feel like. So, I want to share in case you ever wondered, but were afraid to ask. What exactly does progressive muscle weakness feel like to me? Picture a weighted blanket covering your whole body. or picture attaching weights to your ankles, knees, hips, core, shoulders, arms, wrists and going about your normal daily activ