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Showing posts from October, 2022

About Me

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Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

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The Best Roommate

Hello and welcome. Glad you stopped by! Growing up I had many hospital stays. After my extensive foot and ankle surgeries I would usually have to stay for about a week. At the time they didn’t send you home as quickly as they do now. I stayed so I could do rehab/physical therapy while I was there, and learn to walk with my crutches, or whatever it was that I needed to do. They taught me how to go up and down stairs with them and things like that. Because of my weak arm muscles using crutches was hard for me, and balancing on one foot was hard too because of my muscle weakness. However, they pushed me to keep walking, and I’m glad they did. Over time, I learned to master the crutches, and actually got to be pretty fast on them, getting better with each surgery. PT session as an adult Also, back in the 70’s-80’s private hospital rooms weren’t very common. I could always count on having a roommate. Sometimes they were good, sometimes not so good. Once I was paired with a woman that scream

Cultivating Humble Courage

Hello and welcome back, or if you just found Humbly Courageous, welcome! I believe we all have humble courage that we have to tap into. Some may be new to it, or others may have been forced to practice using it their whole lives. So, what do I even mean by humbly courageous, and how did I even start growing my humble courage to begin with? Like I have said before, humble courage, for me, was inevitable because I was born having to face an everyday battle. I learned very early on that I needed this quiet, unassuming courage to survive and thrive. Check out the link below to read more about the meaning behind Humbly Courageous.  https://humblycourageous.blogspot.com/2021/01/the-meaning-behind-humbly-courageous.html?m=1 When you live in a world where everywhere you go, you stand out because of a physical disability, you have to find something to tap into, a place to go mentally where you can feel safe when everything around you feels scary and unwelcoming. If you don’t know me personally,

Back At It

Hello and welcome back! If you are new here, I’m so glad you stopped by. I hope that after reading this post, you may go back and read more about the Humbly Courageous journey in previous posts.  https://humblycourageous.blogspot.com/?m=1&fbclid=IwAR0r6iGJYcK3IGKIieL7Ap5jMLcZw2XI-cxpOrkpOxCvxLHRwgHW8AzELlA Well, I made good on my promise to myself after my most recent stem cell treatment last week. I rested my body, slowed down a bit, as much as I could with a household and teenager to take care of! I took over a week off from my workouts, which I have not done since I put my therapy pool in three years ago. And I can tell you, I missed it like crazy! I did some stretching to keep my muscles from getting sore. Also, of course, the normal everyday household activities, which is like a workout in itself, living with a disability that affects my strength. I managed to let some things go, which is hard for this obsessive I want everything in its place type of gal!  The gift of movement

Stem Cell Treatment #5

Hello and welcome back to Humbly Courageous, or if you are new here welcome. My hope is that you will gain some insight on what it’s like not only physically, but emotionally as well living with a lifelong disability. There are happy stories, sad stories, stories of triumphs and stories of defeat. I do my best to tell my story from a place of vulnerability and hope for my future, as well as the hope that it may help someone else to not feel so alone in their journey.  In May I received my 4th SVF stem cell treatment. If you are looking for more information on my stem cell journey, I would suggest you start at the beginning, which you can find in a previous blog post titled "An Unexpected Opportunity" linked below. Now that my cells are banked, it’s just a matter of scheduling their delivery to my doctor, who gives me my infusion. Much easier than the initial process when they were retrieved.  https://humblycourageous.blogspot.com/2020/12/an-unexpected-opportunity.html?m=1 I d