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Showing posts from December, 2022

About Me

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Humbly Courageous
Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others.

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A Look Back

Hello and welcome to the last post of 2022! I can’t believe how fast this year has gone by. That’s what everyone always says, right? It’s just feels more true each and every year. At some points in our lives, we want time to slow down so we can bask in our comfort, peace or joy, and at other times when life is unbearable, we just want it to speed up and for that time to pass quickly. The one thing we all as human beings have in common, is that we can’t control any of that!  For me, in many ways, 2022 has been a wonderful year. I started the year off being chosen as MDA’s National Ambassador, which as I’ve said, was just a dream come true. It gave me a new purpose, and has really pushed me outside of my comfort zone in SO many ways. I’ve definitely grown and learned a lot about myself and others. When I accepted the role, I just had to do it afraid. I knew it would challenge me, and public speaking, well I’ve come a long way in that arena, as far as being comfortable telling my life sto

Caregiving With a Disability

Hello and welcome! I hope your week has gone a little more smoothly than mine! If you have escaped this years’s flu bug so far, consider yourself lucky. It’s a bad one.  I was just coming off of helping my husband Jamie through a minor shoulder surgery in the days before Thanksgiving. On top of that he caught the flu, and so it was a double whammy for him. Probably the top anxiety producer for me at this point in my life, is when there is a need to physically care for someone in my life. It causes an all out anxiety attack, and I’m not sure how to fix that. As someone with a disability, I unfortunately can’t wave a magic wand to suddenly make myself more physically capable, and make my body do things that it normally can’t, even when I so desperately want to. When a person in my life is sick or hurt, my motherly instinct is to want to take care of them. Problem is, I’m often just not physically capable of doing so. The guilt, and to be honest shame I feel surrounding this topic can be